Disease or Disorder Specific Organizations
American Association of Mental Retardation (AAMR)
The Arc
Autism Society of America
Genetic Alliance
Hydrocephalus Association
International Family Institute
National Attention Deficit Disorder Association
national down syndrome society (ndss)
National Fragile X Foundation
National Organization for Rare Disorders (NORD)
United Cerebral Palsy (national)
United Ostomy Association
Velo-Cranial-Facial Syndrome Organization
The UCLA Center for Autism Research and Treatment
Metachromatic Leukodystrophy Foundation

Parent Education and Support Groups
Family Voices
MUMS: National Parent-to-Parent Network
Parent Advocacy Coalition for Educational Rights (PACER)
Parents Helping Parents
The Technical Assistance Alliance for Parent Centers
Listen to Our Stories - Listen to Our Stories is an anthology of words, pictures, and songs by children and young adults with disabilities. It includes poetry, essays, interviews, songs, journal writing, letters, and pictures. Contributors range in age from 5 through 21 and have widely varied backgrounds and disabilities. The website has an extensive list of resource links that will help you to further explore the issues that the stories in the collection raise.
Project Linus

Disability Policy
Center for the Study & Advancement of Disability Policy
Minnesota Governor’s Council on Developmental Disability

General Information
Disabilities Information Resources
National Information Center for Children and Youth with Disabilities
Disease InfoSearch

Government
American with Disabilities Act Information
National Council on Disability
National Information Center on Developmental Disabilities (NICDD)
Presidents Committee for People with Intellectual Disabilities

Published Materials
Brookes Publishing
The Disability Resource
Exceptional Parent Library
Woodbine House

California Resources
DisabilityBenefits101.org